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The stark choice between a life with care or no life at all | Letters

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Lucy Webster does a brilliant job of rewriting the narrative around care for disabled people, making it clear that such support is empowering for many (Some people think they would rather die than have help brushing their teeth – but care is not tragic, 6 June). I applaud her. And I envy her.

The narrative unfolding for me now is rather different. My own disability is new to me and growing. A few years ago, I was walking miles, climbing rocks, driving alone across Europe, working and playing hard. Now, I need sticks to cross a room and cannot stand up long enough to cook a meal. For me, care is a powerful symbol of what I am losing and how much harder my life is becoming.

Good care will not be easy to get. I am already overwhelmed and exhausted by the changes happening in my body; I can’t face the further effort that getting care will involve.

I also dread the loss of privacy that care will bring. I live alone and I like it that way. I don’t invite many friends round and I find strangers difficult. The mere thought of care workers in my home makes me cry.

I have, of course, experienced pity and condescension, but they are not the reactions I fear most. I know that I will need to prove I am “disabled enough”, and I know some people will disbelieve me. Such disbelief is devastating when you are already reeling with the shock and confusion of degenerative disease.

So I’d love to believe that “care is brilliant, fulfilling and life-enabling”. But I am mourning the physical changes that are leading me to need care, and I am overwhelmed by what I will need to do to get it. I need help with these things, perhaps even more than I need practical help. I can’t celebrate my need for care – not yet.
Fiona Weir
Huddersfield, West Yorkshire

Lucy Webster writes that, for many adults with a disability, “The choice is not between a life with care and a life without it, but between a life with care and no life at all.” She is right about this, and that the cared-for should not be pitied. Her experience, however, is dissimilar to most adults with severe disabilities, ie she has funding sufficient for flexible 24-hour care that facilitates an active life, and is in good enough health to be able to work.

In contrast, many adults with severe disabilities are unable to work and are reliant on care packages. Potentially housebound, they’re lucky if they have the necessary care package to enable them to keep body and soul together, and, if their maximum four calls out to their home every day still leave them at risk, they will find themselves with no choice but to accept 24-hour care (probably in an old people’s care home).

A report by the MS Society in 2017 found that 3,000 working-age adults in England were stuck in care homes for older people. The current figures on how many severely disabled adults find themselves in residential care remains hidden.

In 2019-20, 10 years into austerity and a matter of months before the effects of Covid-19 began to hit, local authorities received 560,000 requests for care support from disabled adults. In total, only 290,000 of them went on to receive long-term care and 28,000 received episodes of short-term care, according to the King’s Fund. Therefore, alongside Webster’s eulogy to the joys of care, there should also be a call for well-resourced, flexible, 24-hour care for all severely disabled adults, enabling them, like her, to live life well and not just survive.
Louise Hardwick School of law and social justice, Liverpool University
Molly Hardwick Master’s in social work student, York University

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Kevin Lankinen, Predators take down Islanders 4-1

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Kevin Lankinen made a career-high 48 saves and the Nashville Predators beat the New York Islanders 4-1 on Friday night for their seventh victory in nine games.

Filip Forsberg and Roman Josi scored and Matt Duchene and Mikael Granlund added empty-net goals. The Predators have won nine straight games against the Islanders, the longest active streak against a single opponent. The Predators are 11-1-1 in their last 13 overall against the Islanders.

“Lanky knew what he was doing. We had great goaltending,’’ Forsberg said. “The reason we are happy is the play of our goaltender.”

Mathew Barzal scored for New York midway through the third period.

“That’s a good hockey team over there,’’ Barzal said of the Predators, who are 7-1-1 in their last nine games. “They are heavy and strong with good D. It could have gone either way.”

The Predators were coming off 4-3 comeback win at New Jersey on Thursday night in which they scored with nine seconds left in the third period and won 33 seconds into overtime.

“We played two solid games against two very good teams,″ said Duchene, whose goal was the 300th of his career. “The Islanders threw the kitchen sink at us in the third.”

Forsberg opened the scoring on a power play with 5:42 left in the first with his eighth goal of the season. Duchene and Josi assisted.

Josi, the Predators captain, made it 2-0 on a power play at 8:22 of the second. Forsberg and Duchene assisted.

Josi has 10 points in his last seven games against the Islanders, including four assists in Nashville’s 5-4 home Nov. 17. The Swiss-born defenseman is four points from tying David Legwand for most points (566) in Predators history.

Lankinen made nine saves in the first, 18 in the second and 21 more in the third. The 27-year-old Finnish goaltender played the previous two seasons with Chicago.

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“Kevin was great. He was really good down the stretch,’’ Predators coach John Hynes said. “It’s great to see him get rewarded.”

Islanders Lane Lambert said he was pleased with the Islanders’ offense which generated a season-high 49 shots. But Lankinen was there to stop all but one as the Islanders lost for only the fourth time in 12 home games.

“We did a good job at times,’’ Lambert said. “It was just one of those nights.”

Predators defenseman Ryan McDonagh left the game nine minutes into the third period after he was struck in the nose on a shot by Islanders defenseman Alexander Romanov. McDonagh, the former Rangers captain, wears a face shield.

The Islanders scratched forward Kyle Palmieri, who was placed on injured reserve on Thursday retroactive to Nov. 21 … The Islanders also scratched forwards Cal Clutterbuck (day-to-day with an undisclosed injury) Ross Johnston and Hudson Fasching, who was recalled from AHL Bridgeport on Thursday along with Cole Bardreau who skated in Clutterbuck’s spot on a line with Casey Cizikas and Matt Martin … The Predators scratched forwards Eeli Tolvanen and Cody Glass.

Islanders: Host Chicago on Sunday night,

Predators: At Tampa Bay on Thursday night.

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WHO estimates 90% of world have some resistance to Covid | Coronavirus

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The World Health Organization estimates that 90% of the world population now has some resistance to Covid-19, but warned that a troubling new variant could still emerge.

Gaps in vigilance were leaving the door open for a new virus variant to appear and overtake the globally dominant Omicron, the WHO director general, Tedros Adhanom Ghebreyesus, said.

“WHO estimates that at least 90% of the world’s population now has some level of immunity to Sars-CoV-2, due to prior infection or vaccination,” said Tedros, referring to the virus that causes the Covid-19 disease.

“We are much closer to being able to say that the emergency phase of the pandemic is over – but we’re not there yet,” he told reporters.

“Gaps in surveillance, testing, sequencing and vaccination are continuing to create the perfect conditions for a new variant of concern to emerge that could cause significant mortality.”

Last weekend marked one year since the organisation announced Omicron as a new variant of concern in the Covid-19 pandemic, Tedros noted.

It has since swept round the world, proving significantly more transmissible than its predecessor, Delta.

Last week, the latest real-world study of updated Covid boosters showed that new vaccines by Pfizer/BioNTech and Moderna are likely to provide better protection compared with the original shots.

The study of more than 360,000 people indicated that the boosters offer increased protection against new variants in people who have previously received up to four doses of the older vaccine.

Since their introduction to the US in September, the vaccine boosters, which contain both original and Omicron BA.4/5 coronavirus strain, provided greater benefit to younger adults aged 18-49 years that those in the older age group.

Tedros said there were now more than 500 highly transmissible Omicron sub-lineages circulating – all able to get around built-up immunity more easily, even if they tended to be less severe than previous variants.

Around the world, 6.6 million Covid deaths have been reported to the WHO, from nearly 640 million registered cases. But the UN health agency says this will be a massive undercount and unreflective of the true toll.

Tedros said more than 8,500 people were recorded as having lost their lives to Covid last week, “which is not acceptable three years into the pandemic, when we have so many tools to prevent infections and save lives”.

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Kevin Durant, Nets beat Raptors to tally fourth win in a row

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Make it four in a row and seven of their last nine.

The Nets are one of the hottest teams in basketball and moved two games above .500 with a 114-105 victory over the Toronto Raptors in front of a sellout 17,732 fans at Barclays Center on Friday night.

They led by as many as 36 points before letting the Raptors creep back into the game late in the fourth quarter.

After digging a 2-6 hole to start the season, the Nets (13-11) have pulled a complete 180. They are inching closer toward contender status, though they still have tremendous ground to cover separating themselves from the cream of the NBA crop.

And it both looks and feels different when the Nets aren’t leaning too heavily on Kevin Durant — or Kyrie Irving, as they did for unending stretches last season.

Durant’s minutes have become a point of contention in Brooklyn, as they were last year. He entered Friday’s matchup as the league’s leader in minutes, points and field goals. At age 34 and in year 15, the Nets star is averaging 37 minutes per game for the second consecutive season.

“We’ve had to play Kevin more minutes than we’ve wanted to,” head coach Jacque Vaughn said ahead of tipoff. “That’s just kind of where we are. He understands that.”

It hits different, though, when Durant has help, and it reflects on the scoreboard.

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Sharpshooter Joe Harris got hot early, scoring 11 points in the first quarter alone. After breaking out of his shooting slump to hit four out of six threes in Wednesday’s win over the Washington Wizards, Harris, who is starting in place of the injured Ben Simmons (calf strain), hit another five threes for 17 points against the Raptors on Friday.

Royce O’Neale hit a trio of timely threes, and Kyrie Irving shouldered a large chunk of the scoring load, scoring 27 points on 17 shot attempts. Veteran forward TJ Warren, in his Nets debut after missing two-plus seasons with consecutive stress fractures in his left foot, scored 10 points on 5-of-11 shooting off the bench.

And Nic Claxton added 15 points and nine rebounds, sealing the game with a putback dunk, then offensive rebound and finish that extended the Nets’ lead back to 16.

He forced Raptors coach Nick Nurse to call his second to last timeout with four minutes left in the fourth.

It was Durant’s lightest workload of the season. He still played 38 minutes but they were low impact. He only took 10 shots and finished with 17 points, nine rebounds and seven assists.

The Nets built a lead as large as 36 and watched the Raptors whittle the deficit down to as little as seven in the final minute of the fourth quarter. It wasn’t a pretty finish but nothing has come easy for the Nets this season.

They have a chance to make it five in a row on Sunday, though they’ll have to go through last year’s Eastern Conference champion Boston Celtics to get there.

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